IF SBH | Original Link Register for the 2014 IF General Meeting 7 June 2014 Buenos Aires It will take place together with the 25th International Spina Bifida & Hydrocephalus Congress “GENerating Changes” organised by APEBI. More information
Staffordshire Newsletter | Original Link by Sarah Marshall Rugeley, Staffordshire, United Kingdom —A brave youngster who has endured years of gruelling surgery can now walk for the first time on her own – and has been nominated for a Newsletter award. Millie Cope, seven, was born with spina bifida and has always used either a […]
WJHG | Original Link by Brian Hill Jackson County, Florida, United States —A Jackson County service club is teaming up with some local businesses to help a child with health issues. The Optimist Club has organized a fundraiser for Molli Redmon who suffers from Spina Bifida. Like most girls her age, 11-year old Molli Redmon […]
Daily Mail | Original Link by Sara Malm Nijmapur, India —A six-year-old boy has found himself worshipped in his tiny Indian village after growing a foot-long tail. Amar Singh has a patch of thick hair on the small of his back, which has grown to more than 12 inches in length to resemble a ‘tail’. […]
NIH Research Matters | Original Link Four young men paralyzed below the chest because of spinal cord injuries were able to regain control of some movement after receiving an experimental spinal stimulation therapy. If confirmed in larger studies, this type of treatment may one day improve outcomes for people living with paralysis. In an earlier […]
KRIS-TV | Original Link by Ila Mar Corpus Christi, Texas, United States —It was a windy day for baseball, but that didn’t stop dozens of people with mental and physical disabilities from playing in the Miracle League’s opening day for baseball. Families, friends, and many volunteers gathered at the Citgo Miracle League field to help […]
11 April 2014 // Key actors on spina bifida and hydrocephalus global arena assembled today in Boston, Massachusetts at the unprecedented event- Partner Engagement Meeting. IF is represented by its President Margo Whiteford and Secretary General Lieven Bauwens.
The main aim of this gathering is to engage in a forum to explore a strategic partnership and identify potential opportunities and synergies to strengthen global efforts for the prevention of spina bifida and hydrocephalus and care of people living with these conditions.
Discussions will tackle existing challenges and provide a forum for partner groups to share information on each organization’s priorities and current efforts. The potential for partner network collaboration and public health impact across our organizations will be optimized and synergistic opportunities will be identified.
Monterey County Weekly | Original Link by Walter Ryce Salinas, California, United States —Tatum is almost 4 years old now, and was born with Spina Bifida, a common birth defect of the spinal cord that may result in weakness or paralysis of the legs or paralysis, among other health problems. The disease necessitates that little […]
Isle of Wight | Original Link Isle of Wight, United Kingdom —An organisation that helps people with Spina Bifida and Hydrocephalus on the Isle of Wight has been awarded a £2,500 grant to raise awareness of the support it can offer to families. The Isle of Wight Association for Spina Bifida and Hydrocephalus (IW ASBAH) […]
The National UAE | Original Link by Taimur Khan Washington, DC, United States —When Mohamed Al Aryani moved from Al Ain to Washington last year, the 12-year-old football fanatic had never walked without crutches, let alone played sports with cousins and friends. Mohamed and his parents had travelled to the US capital for years for […]
9 April 2014 // Smarter Futures, a partnership that brings together the Ministry of Foreign Affairs of the Netherlands, AkzoNobel, Flour Fortification Initiative (FFI), Helen Keller International (HKI) and the International Federation for Spina Bifida and Hydrocephalus (IF), has recently published a guide for Fortification Monitoring and Surveillance called FORTIMAS. It can be downloaded here. The primary aim of the guide is to propose a population-level data collection approach to help answer the question, “is the micronutrient status of those who regularly consume sufficient quality fortified flour improving?”.
3 April 2014 // Representatives of the European Year of Citizens Alliance (EYCA) of which IF is a member, met with the President of the European Parliament, Martin Schulz.
The aim of this meeting was to discuss citizenship participation as a vital aspect for Europe’s future. For people with spina bifida and hydrocephalus discrepancies in the accessibility of healthcare services still remain main barriers in executing a fully active and participatory citizenship.
Bay News | Original Link by Summer Smith Sarasota County, Florida, United States —A Sarasota County woman is hoping to use her disabilities to inspire others. This weekend, Cody Bowman, 27, is participating in the Ms. Wheelchair Florida pageant in Orlando. Bowman was born with Spina Bifida and is now confined to a wheelchair. She […]
The Daily Times | Original Link by Linda Braden Albert Knoxville, Tennessee, United States —Faith Russell may only be 8 years old, but the impact she is having on the world around her exemplifies the Bible verse … “And a little child shall lead them.” Faith, wearing a pink T-shirt with the words, “I’m Faith,” […]
WEST College Scotland students in Greenock raised valuable funds for the Scottish Spina Bifida Association. Greenock Telegraph | Original Link Greenock, Scotland, United Kingdom —West College Scotland students in Greenock raised valuable funds for the Scottish Spina Bifida Association. Six members of the students’ association teamed up to help raise £310. They decided to support […]