Lawrence Dilworth, actor & photographer
27 May 2014 // On 11 April 2014, the first Spina Bifida and Hydrocephalus Prevention ...
Baroness Tanni Grey-Thompson, Britain’s 11-time Paralympic champion
The latest research all in one place.
Lazaro, 37 Kissimmee, FL, United States I was born with Spina Bifida. I can walk with braces on my legs. It’s definitely not easy. I wake up in pain every morning and fall asleep in pain. I’ve had numerous operations due to Spina Bifida. I struggle everyday with this disability, but I do what is […]
Haley, 20 Fresno, CA, United States Wow, where do I start?…My short 20, almost 21, years of life have been quite a journey. First off, I was born into a Christian home and I’m a firm believer myself. I was born with Spina Bifida (obviously) and I’ve had 24 surgeries. I have some learning differences, […]
Natalie, 29 Oceanside, CA, United States I’m not going to lie. My first instinct is to say my life with spina Bifida has been a nightmare but I also realize I’ve had bad luck and flukes. This isn’t normal so I hope you all don’t think it is. My understanding is spina bifida is a stable […]
Through our social network accounts (Facebook, Twitter, LinkedIn, and Google+), we listen to this magazine’s readers and hear their stories. Two people may be born with a diagnosis of spina bifida, yet their experiences are completely different. Twitter follower, @tyre64 would like readers to describe what what their life is like (in a paragraph or two) for this magazine. […]
Canton, OH, United States —Faces of Spina Bifida online magazine seeks a medical professional (or clinic) to answer reader questions. Inquiries include how a birth defect impacts mobility compared to later-life injuries, appropriate exercise regimens, and which technological innovations could positively affect people living with spina bifida. Recommend a medical expert by submitting the form below:
Holdin’ Out for a Hero | Original Link by Laura Tellado Dear Woman, First off, let me say that I am not writing this on an impulse. In fact, I have given this a lot of thought and have decided to give this situation a “grace period” in which I could cool off, reflect, cry, […]
Attitude is Everything, the charity dedicated to improving deaf and disabled people’s access to live music, has announced that UK psych-rock band TOY will headline Club Attitude this year. Club Attitude is an inclusive gig showcasing exemp…
10 February 2015 // Timely intake of an adequate amount of folic acid before and during the first three months of pregnancy is one of the known measures to prevent Spina Bifida. Interviews were held with 394 women in northern Uganda and researchers established that the folic acid intake in this area is low. This […]