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Spina Bifida Information Act: Guide to Introducing Legislation for the Spina Bifida Community

March 26, 2015  |  Opinion

Sunday, March 22, 2015Colleen, Blogger at Choo Choos and TuTusLouisville, KY, United StatesKentucky, United States —Kentucky recently passed the Spina Bifida Information Act, which ensures that when healthcare professionals who give parents the Spina Bifida diagnosis, they will give them written, up-to-date information about Spina Bifida, as well as contact

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Riley, an outgoing, social teen inspires a playwright

March 19, 2015  |  Tributes

by Rachel AllenJohnstown, Pennsylvania, United StatesMy daughter Riley, 14, was the 16th baby to undergo in-utero surgery at CHOP (Children's Hospital of Philadelphia) in 2000. She was born at 29 weeks and has always shown a tenacity and determination. Riley is beautiful, bright and in the National Honor Society at her middle

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Mustafa | What life is like (for me)

March 19, 2015  |  Opinion

Mustafa, 19Grapevine, United StatesThroughout my life I've experienced many ups and downs, enduring multiple surgeries, issues with school, and social issues. However, the most impactful and life-changing issue I've dealt with is bullying.I was bullied a lot throughout middle school and high school, sometimes even physically. I was pushed around

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No excuses.

March 17, 2015  |  Opinion

Exercise is important at every stage of life. For many people with disabilities there is a lack of education and encouragement to exercise. Outside of physical therapy a large amount of the disabled never workout. Without physical exercise the disabled person becomes even weaker and with more health problems. Due to

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Early Pelvic Fixation Failure in Neuromuscular Scoliosis

March 12, 2015  |  Research

Abstract BackgroundTo report on early failures of pelvic fixation in posterior spinal fusions for neuromuscular scoliosis. MethodsA retrospective review of posterior-only spinal instrumentation and fusion to the pelvis with

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World Birth Defects Day

February 26, 2015  |  World

3 March 2015 // More than 8 million babies worldwide are born each year with a serious birth defect. Birth defects are a leading cause of death in the first year of life, and babies who survive may have life-long physical or mental disabilities. Spina bifida is the most common kind

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World Birth Defects Day

February 26, 2015  |  World

3 March 2015 // More than 8 million babies worldwide are born each year with a serious birth defect. Birth defects are a leading cause of death in the first year of life, and babies who survive may have life-long physical or mental disabilities. Spina bifida is the most common kind

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Training workshop on surveillance and prevention of congenital anomalies and preterm births

February 26, 2015  |  World

2-5 March 2015 // WHO Department of Nutrition for Health and Development in collaboration with the International Clearinghouse of Birth Defects Surveillance and Research, the International Federation for Spina Bifida and Hydrocephalus, and the National Center on Birth Defects and Developmental Disabilities at United States Centers for Disease Control and Prevention

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