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Caleb's family is now raising funds so another child in Northern Ireland can get a set of wheels.

Little Caleb’s got his wheels

Down Recorder | Original Link Ballyhornan, Co. Down, Northern Ireland —LIKE most toddlers, little Caleb Keown could happily spend hours emptying his mum’s kitchen cupboards. But unlike many mothers, Stella Keown is just as delighted as Caleb by the mess he creates. For cupboard emptying is a brand new pastime for the 18 month-old Ballyhornan […]

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Makayla Maxwell, a 6-year-old Kean Elementary School student, holds bags of popcorn being sold in order to purchase a swing with special accommodations for the playground. —Mike Schenk

Kean Elementary Students Helping to Purchase Swing for Classmate

Students raise money for classmate with spina bifida The Daily Record | Original Link by LINDA HALL Wooster, Ohio, United States—Popcorn has been a hot commodity at Kean Elementary School during October. On Fridays during the lunch hour, it sells for 25 cents a bag. At the center of the fundraiser and all the attention […]

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Let’s connect!

Here at Shine we are always trying to think up new ways of connecting our members. We realise that often the best advice and support comes from those who can truly understand the challenges you face – your fellow members. One of the easiest and …

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The prevalence of women taking folic acid supplements to reduce NTDs is still low; about 50% of all pregnancies are not planned.

The Societal value of Prevention, Diagnosis and Treatments of Rare Diseases

08 October 2014 // During the ICORD 2014 Annual Meeting in the Netherlands, experts convened to discuss the lack of progress in the prevention of NTDs and how to translate research evidence into effective and efficient policy decisions, balancing benefits and risks globally, resulting in policy determinations acceptable to all stakeholders. IF Secretary General, Lieven Bauwens […]

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South Africa: brand new association for people with SBH

2 October 2014 // The new Association for Spina Bifida and Hydrocephalus South Africa was launched during a ceremony in Cape Town last week. Supported by a committed group of board members and experts, Zubeida Toefy (front middle) expressed a great ambition for the next couple of years. ASBAH SA intends to reach out to the […]

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Greg Smith

Fighting for equality

Greg Smith joined Shine’s Board of Directors last year. In his position as Head of User Experience Research and Design for Europe at ebay, Greg helps drive the usability of the platform that we all now use to buy and sell any number of different…

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