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Shine Health Hub

If there’s one issue that our members and their families constantly worry about it’s the quality of the health services that they can access. We all know that amazing things can be achieved by our members and that disability is more about …

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world SB&H Day IFSBH

Access to healthcare for all! 25 October #WSBHD

The World Spina Bifida and Hydrocephalus Day was held for the first time on 25 October 2012 at the European Parliament in Strasbourg. Supported by the WHO, IF members from all over the world made this event a great success. On 25 October 2013 we celebrated the launch of our PUSH platform and met at the European Parliament in […]

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Harleigh Hughes, who was delivered by her father in the emergency lane of the M4 at Eastern Creek on Wednesday, has been moved to Westmead Children's Hospital's High Dependency Unit well before doctors thought she would be ready to leave the Intensive Care Unit.

Miracle baby Harleigh Hughes continues to defy odds

Campbelltown MacArthur Advertiser | Original Link by Katherine Fenech Glenfield, Australia —She is not yet a week old but baby Harleigh Hughes has already racked up a lot of experience at defying the odds. Harleigh was born in the family car, parked in the emergency lane of the M4 at Eastern Creek last Wednesday morning. […]

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ssba golfday 2014

Charity golf day raises £7000

Largs & Millport Weekly News | Original Link Largs and Wemyss Bay, Scotland, United Kingdom —The Scottish Spina Bifida Association’s annual Golf Day, staged at the West Kilbride Golf Club, raised £7,000 for the Charity, but no winners for the Suzuki Swift! This vital fundraising event for the Scottish Spina Bifida Association (SSBA) was supported […]

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Gastein's overall aim is a platform for discussion for the various stakeholders in the field of public health and health care.

Enabling Technologies for Better Patient Outcomes

24 September 2014 // The European Federation of Pharmaceutical Industries and Associations (EFPIA) is organising a live streaming session from the European Health Forum Gastein. This session will bring together industry, policy-makers and international experts on emerging technologies that harness the use of real world data to improve patient outcomes and accelerate clinical development. The opportunities provided […]

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"'The Juncker Commission: A strong and experienced team standing for change"©EC

The Juncker Commission tackling the European health policy

19 September 2014 // President-elect Jean-Claude Juncker has presented the new allocation of Commissioners’ portfolios. The appointment of the College of Commissioners opens a new phase for the European Union, one that will run from November 2014 through the next five years. As the executive body of the European Union, the European Commission is responsible for […]

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