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The Brewers are set to Shine on Valentine’s Day

Burton Albion FC will be fundraising for Shine, the national charity for people with spina bifida and hydrocephalus, before their match against Oxford United on the 14th February 2015. A team of volunteers will be collecting for the charity outside th…

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The EP Disability Intergroup elects its new Bureau

30 January 2015 // Getting ready for the assessment of the European Union’s work in implementing the United Nations Convention on the Rights of Persons with Disabilities (UN CRPD), the Disability Intergroup has elected a whole new Bureau consisting of …

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EPF Position Paper “Healthcare for all”

29 January 2015 // The European Patients Forum (EPF) released a position paper called “Healthcare for all” to promote the development of EU and national policies that tackle discrimination faced by patients in exercising their right to healthcare. EPF is strongly committed to realise its vision that all patients with chronic and/or lifelong conditions in […]

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World Birth Defects Day -CDC

The first World Birth Defects Day is approaching

A network of 12 leading global health organizations announces the first annual World Birth Defects Day, to be observed March 3, 2015. The purpose of this observance is to raise awareness about the occurrence of birth defects, develop and implement prim…

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EASPD ‘Employment for All’ award

26 January 2015 // The European Association of Service providers for Persons with Disabilities (EASPD) would like to promote better employment opportunities for persons with disabilities, and your help is needed. EASPD invites you to share your best practice, model, method or tool by participating in the EASPD ‘Employment for All’ award.  Your best practice […]

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Snowflake Shake

The Snowflake Shake | Michigan social event

Spina Bifida Association of Michigan presents Saturday, February 21, 2015 5:00pm to 10:00pm at The Marriot Livonia 17100 Laurel Park Drive, Livonia, MI 48152 Tickets $30 each or 2 for $50 Children 12 years and under just $10 Get your tickets online today! 248-535-7503 (Lisa) Download Flyer

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Supplement use and other characteristics among pregnant women with a previous pregnancy affected by a neural tube defect – United States, 1997-2009.

Authors: Arth A, Tinker S, Moore C, Canfield M, Agopian A, Reefhuis J Abstract Neural tube defects (NTDs) include anomalies of the brain (anencephaly and encephalocele) and spine (spina bifida). Even with ongoing mandatory folic acid fortification of enriched cereal grain products, the U.S. Preventive Services Task Force recommends that women of childbearing potential consume […]

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Evelyna Castro, Miss Wheelchair Washington

VA program helps beneficiaries stricken with spina bifida

US Veterans Affairs by Walt Bonora Washington State, United States —When Evelyna Castro sees herself in a wheelchair she doesn’t think of herself as disabled. Instead, she has turned her disability into something positive. Born with spina bifida, a debilitating spinal disorder that happens when a baby is in the womb and the spinal column […]

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