Congratulations to the five members of the Youth Group: Ege Anli, Dominik Drdul, Rowan Ford, Elisa Garcia and Merlin Kizant! The 5 young people with spina bifida and/or hydrocephalus have been selected to represent young people with SBH and encourage them to become participative and to be active members. Currently, many SBH associations are managed by parents with children with disabilities which means IF runs the risk of losing touch with the actual needs of its members and operating as a voice of parents and caregivers.
The IF Youth Group will contribute to make people with SBH experienced self-advocates of their issues and to develop IF’s work on topics that are relevant to young people with SBH, such as transition, inclusive education about training, professional skills, independent living, tourism, etc.
The main target group of the first project IF Youth Group is young people involved in their associations between 18 and 28 years from across Europe with a diverse background in order to enable across-fortification of ideas.
The first meeting of the IF Youth Group will be held during IF’s annual conference, the 26th International Conference on Spina Bifida and Hydrocephalus in Solbiate Olona, Milano, Italy from October 16 - 18, 2015. There the Group members will establish their working procedures and agree on the work plan.