National Spina Bifida Conference
by Kelly, mom of Grayden
I just returned tonight from the National SBA conference in Indianapolis, Indiana. To all of you who donated money to Grayden's Stroll n Roll, I want to thank you again because my trip to this conference was covered by our local SB organization thanks to your generous donations!!
It was a great opportunity to learn more about the issues related to Spina Bifida and ways that we can prepare and help. I must say, some of the information is hard to hear. I just don't want to go there yet. I tried to only go to the sessions that may impact Grayden's care right now or only 1 to 2 years out, but even that was a little overwhelming. My biggest struggle is all of the information regarding bowel and bladder function. I know that no matter what the case we will deal with it and carry on, but it is just the most difficult information for me to take in and digest.
Luckily, I have some great Mamas on my team. I seriously do not know what I would do without these ladies. They have become some of my dearest friends. I know it sounds like I am writing a love note, but I can't imagine traveling this journey without them. Thank you mamas for being there for me and just "getting" it. I look forward to our kiddos growing old together!!