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Boston, Massachusetts, United States —On 11 April 2014, the first Spina Bifida and Hydrocephalus Prevention and Care Partner Engagement meeting was held. Organized by Boston Children’s Hospital, the International Federation for Spina Bifida and Hydrocephalus (IF), and CDC’s National Center on Birth Defects and Developmental Disabilities, representatives from 21 different organizations in academia, health services, private and public sectors, came together to discuss ways to address challenges, help advance research, and strengthen and move forward prevention and care efforts in the fields of Spina Bifida and Hydrocephalus.
The meeting launched what promises to be an important first step in a much needed concerted effort to improve child health globally and underscored how strategic partnerships can help increase visibility of an issue, allow for sharing of expertise and strategies, mobilize resources, and decrease duplication of efforts.
Additional partner organizations will be invited and a follow-up meeting is planned in July 2014 to further develop a consortium to advance global prevention, care and research efforts for Spina Bifida and Hydrocephalus.