The charity Shine is calling its supporters and the public to #GoYellow during Spina Bifida and Hydrocephalus Awareness Week: 24th-31st October, to help raise awareness of these conditions.
Shine supporters will be having fun and fundraising around the #GoYellow theme, especially on World Spina Bifida and Hydrocephalus Day, Tuesday 25th October, and the charity’s logo will also be bouncing around social media to see how far it can go.
Prestigious national venues around the UK will be also lighting to help make these ‘hidden’ disabilities more visible, including The Senedd, Cardiff Bay; Cardiff City Hall; National Library of Wales in Aberystwyth, St George’s Hall, Liverpool; Leeds Arena; Belfast City Hall; Norwich City Hall and Peterborough’s historic Avenue of Trees.
Behind the fun there is a serious message. The charity is calling for better access to health and social services for people with spina bifida and hydrocephalus, both complex conditions. In particular, improving access to multidisciplinary health services; spina bifida is complex, and can affect many of the body’s organs and systems. Seeing the person as a whole would reduce cost, stress and improve patient outcomes.
Spina bifida is a serious, sometimes life threatening condition, known as a ‘neural tube defect’, which can affect a child’s development, motor skills, and ability to cope with everyday life. This can have a huge impact on the whole family. Many children with spina bifida also have hydrocephalus - which can also occur later in life - and experience many operations and complications. Taking folic acid, with vitamin B12, three months before conception until the twelfth week of pregnancy can reduce the risk of a baby developing neural tube defects.
Shine has more than 11,600 members, in Wales, England and Northern Ireland, and responds to more than 14,500 requests for help each year. The charity provides specialist support from before birth and throughout the life of anyone living with spina bifida and/or hydrocephalus, as well as to parents, families, carers and professional care staff. For more information and to get involved see www.shinecharity.org.uk