The International Federation of Spina Bifida and Hydrocephalus will participate at the session of the United Nations Committee on the Rights of Persons with Disabilities (CRPD) to present its views on the progress made by the European Union towards full respect of human rights of persons with disabilities. The session will be held in Geneva on 27-28 August and bring together international disability experts, representatives of the European Union and disability activists.
IF will also provide a separate submission, its Response to the list of issues on the European Union Report to the UNCRPD, to give additional information to the UNCRPD from the point of view of persons with disabilities and their representative organizations in Europe.
The Convention on the Rights of Persons with Disabilities (CRPD) was adopted by the UN in 2006. It takes on a broad categorization of persons with disabilities and reaffirms that all persons with all types of disabilities must enjoy all human rights and fundamental freedoms.
In 2010, the European Union (EU) approved the CRPD. It was the first time in its history that the EU has become a party to an international human rights treaty. In addition, the Convention was also ratified by most of EU Member States, with the exception of Finland, Ireland and the Netherlands so far.
Countries that have ratified the Convention must report to the UN Committee on the Rights of Persons with Disabilities on their progress towards the full respect of the CRPD. The EU presented its first report in 2014. In addition to the official EU report, European NGOs are mobilizing to present their views on how the EU respects the rights of people with disabilities. In agreement with other European NGOs, IF is leading the submission on Article 25 on Health.
As mentioned in IF response, lack of information about SBH treatment, insufficient reimbursement of additional expenses such as accessible accommodation and travel costs and limited cross-border cooperation of professionals in health-related issues remain areas of concern, and IF will report them to the UN Committee at a meeting on August 27.
On the basis of the information collected from different organisation, the Committee will produce recommendations to the European Union on how to improve the enjoyment of human rights by persons with disabilities. The recommendations will be adopted on 3 September.