Kaylee | What life is like (for me)

May 26, 2015   Opinion

Faces of Spina Bifida Magazine | Source

Kaylee, 31
Massachusetts, United States
As a young woman living with Spina Bifida, things haven't always been easy. Yes, I have probably faced a few more trials and tribulations than my non-disabled friends, but despite these difficulties, I truly don't classify my life as negative. To me, the wheelchair and braces are accessories, and people doubting my ability has become my driving force to succeed. Personally, I hate negative people who believe that Spina Bifida is some sort of death sentence or guaranteed misery... It's not! 

Though I admit it's not always easy and there are days when I wish I didn't have Spina Bifida, it has never, and will never, stop me from living an active and fulfilled life. I am a former dancer who is recently married, college educated and licensed as a speech language pathology assistant. My personal experiences definitely help me in my career. I empathize with the child whose articulation disorder makes them feel awkward as well as the adult who is afraid of not getting a job because employers can't look past their stutter. Truthfully, I don't know what led me to become an SLP-A, but when I got my first job and realized I could make a difference to my young clients, including one child with Spina Bifida, I knew this is definitely the direction I want to take with my life—and I love every minute of it. 

Explaining what my life is like with Spina Bifida in a few paragraphs is MUCH harder than I thought. Yes, there have been a few bumps road, but overall Spina Bifida is not something to feel bad about and it has never, nor will it ever, stop me.