Landon | What life is like (for him)

October 5, 2015   Tributes

Faces of Spina Bifida Magazine | Source

by Latina Adger

This is Landon, he is 21 months old and was born with Spina Bifida (myelomeningocele L2/L3), Hydrocephalus, epilepsy, bilateral clubbed feet, dysgenesis of the corpus callosum, and Arnold-Chiari malformation II. He has a VP shunt, and is a partial paraplegic; with absolutely no sensation from the knees down. 

Landon is an extraordinary child, with an amazing story. Doctors suggested I terminate the pregnancy, but there was never a question in my mind that I would. Despite what the Doctors believed Landon has gone above and beyond the expectations set forth for his life. 

He has undergone three major surgeries, pulling through all at very high success rates. Landon was the talk of the NICU, where he spent the first month of his life. It was believed he would not walk, but thanks to foot and leg castings, AFOs, and physical therapy, Landon can crawl, pull himself up to standing, and is expected to walk despite partial paralyzation. 

Landon has had a very tough life at so young an age, but he is a fighter and with me (his mother) and family by his side, Landon will continue fighting. Always showing off a big beautiful smile he is not only a fighter, but a survivor.