by Laura Tellado, Founder
You may know by now that Papi (Miguel), Mami (Myrna), and I have been traveling in Brussels, Belgium for the past four days. Today, we got up early and are excited to be in one of our favorite world cities— PARIS!!
The reason I am reaching out to you is not to brag about our travels (although that’s fun! Hehe). I want to let you know what we’ll be doing on our last stop in Europe. As thrilling as Paris will be, I’m excited to share that we’re traveling to Ghent during the last week of October (which is also Spina Bifida Awareness Month!!).
What’s in Ghent, Belgium, you ask? The International Federation on Spina Bifida and Hydrocephalus
(IF) will host its annual conference
, Turning Points, this year in Ghent!! We are very grateful to have the opportunity to attend and continue, as I like to say often, “connecting the global dots” among the spina bifida community. As so many people across the globe, including in Europe, have reached out to us, this is very important, particularly during October
We all feel it’s particularly important to have a presence at this event, since it is a global organization with which I’ve been in contact for many years. Renée Jopp, their communications officer, has been a friend of mine for years and a diehard supporter of Holdin’ Out for a Hero and now The LSB Project!). Many of the national spina bifida organizations for each country are also affiliated with IF as partners.
We’ve also long admired the work IF is doing on the ground in developing countries like Uganda and Tanzania in partnership with wonderful organizations like World Health Organization
(WHO). They are empowering people in these areas by employing them as liaisons— people of their own with a personal connection to spina bifida and hydrocephalus. (We recently shared such a story, from Juliana of Nairobi, Kenya.) If you haven’t seen these stories, please visit the Facebook page
I hope to count on them also to help spread the word about The Laurita Spina Bifida Project as we continue to grow!