Brussels—On 1 July 2015, representatives of pan-European patient and civil society groups met to discuss the issue of incontinence and the provision of better continence care in Europe at home and in the community. In particular, participants focused their attention on setting up key policy recommendations to improve the management of care of people with incontinence and their carers.
For instance, almost all people with Spina Bifida suffer from incontinence. If it is not well managed, it can cause kidney and other health-related issues and even premature death. Lieven Bauwens, Secretary General at IF, stated that incontinence is under-recognised and can have a significant impact on social inclusion.
As a result of the meeting, the participants produced the Joint Position Statement to contribute to a better understanding of the emotional, family and social burden of incontinence in policy and stakeholder circle.