IFSBH | Original Link
On 11-12 August 2014, IF is organising a workshop in Kenya on developing partnerships for managing the transition of people with Spina bifida and Hydrocephalus from paediatric to adult services. The overall aim is to facilitate the development of a model of service that addresses the changing healthcare needs of persons with childhood-onset disabilities as the individual grows from a child to youth, from youth to young adult, and from young adult to adult. On this occasion we developed a guide on transition from childhood to adolescence for people with Spina Bifida and Hydrocephalus in Africa.
People with childhood onset disabilities and conditions require life-long care. Their needs do not stop at the age of 18. There are therefore three fundamental stages that are common to all and need to be addressed:
- Preparation for transition to adult life;
- Transfer from paediatric to adult services;
- Continuing service throughout adult life.
The approach of our workshop will be to design an individual training package for each group or organisation, taking into account their unique needs, stage of development in regards to transition, economic, legislative, political and sociocultural factors.
There many examples of care models that currently exist in Sweden or Norway. In Toronto, Holland Bloorview Kids Rehabilitation Hospital has had a focus on transition to adult services since 2004. In partnership with adult healthcare organizations, Holland Bloorview has developed successful transition services for young people with cerebral palsy, acquired brain injury, and spina bifida. There put a strong emphasis on early preparation, and continuity of care from infancy through adulthood with significant focus on maximizing the development of the skills required for adult life, and on identifying an adult healthcare partner.
- See more at: http://ifglobal.org/en/home/38-content/4658-transition-workshop-in-kenia-preparing-for-adult-life-and-development-of-adult-services#sthash.T6uL0ZYK.dpuf