MORE | FAMOUS FACES  

Rockers back disability equality campaign

June 23, 2014

Rock acts THE CURE, FRANZ FERDINAND and MYSTERY JETS have thrown their support behind a new campaign to make gigs more accessible for disabled music fans. Express | Original Link London, England, United Kingdom —The Music Without Barriers drive aims to raise awareness of the problems facing disabled revellers when they want

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Boris Kodjoe & Nicole Ari Parker Open Up About Daughter’s Spina Bifida Diagnosis

June 12, 2014

Madame Noire | Original Link by Jazmine Denise Rogers During a recent interview with “Exhale,” Boris Kodjoe & Nicole Ari Parker spoke candidly about learning of their daughter’s spina bifida diagnosis, which is a birth defect that affects the development of the spinal cord. Unsurprisingly, the couple say that they were devastated

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Bonney Lake Police Department welcomes Chief for a Day

May 23, 2014

Bonney Lake Sumner Courier-Herald | Original Link by Theresa De Lay Bonney Lake, Washington, United States —Bonney Lake resident Amy Miller was 20-weeks pregnant when she discovered her daughter, Kelahna Miller, was to be born with spina bifida. Kelahna underwent her first surgery at 4-hours old and has since had more than 40.

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Alexandra's story, Sweden

May 21, 2014

IFSBH | Original Link At first Sweden —Eight years ago, Alexandra’s birth caused a lot of anxiety. She was born with Spina Bifida. Her mother’s biggest fear at the time was that Alexandra would have to use a wheelchair for the rest of her life. Nowadays she doesn’t think much of it.

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Westby first grader serving as March for Babies ambassador

April 25, 2014

Seven-year-old David Landis of Wisconsin[/caption] WEAU News | Original Link by Sarah Moon Westby, Wisconsin, United States —A little boy in one area community is getting a big honor. Seven-year-old David Landis of Westby is this year’s ambassador for the March of Dimes March for Babies in La Crosse. He’ll be joined by his

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Maseon, 5, launches fund-raiser

April 21, 2014

Blacktown Sun | Original Link by Raeesah Lillah Quakers Hill, Australia —A Quakers Hill kindergarten pupil, 5, is donating his birthday presents to charity. Maseon Wellington was diagnosed with spina bifida when he was a baby. "I was devastated but mostly scared about what our future held," said Maseon's mother Tamara Arrow. Northcott, a disability-service

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Boy, six, worshipped in his village as a monkey-like god because he has a foot-long TAIL (... and his family don't want to get it cut)

April 15, 2014

Daily Mail | Original Link by Sara Malm Nijmapur, India —A six-year-old boy has found himself worshipped in his tiny Indian village after growing a foot-long tail. Amar Singh has a patch of thick hair on the small of his back, which has grown to more than 12 inches in length to resemble

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How Zayed’s legacy gives new hope to sick children

April 9, 2014

The National UAE | Original Link by Taimur Khan Washington, DC, United States —When Mohamed Al Aryani moved from Al Ain to Washington last year, the 12-year-old football fanatic had never walked without crutches, let alone played sports with cousins and friends. Mohamed and his parents had travelled to the US capital for

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Garrett Grommesh continues months-long fight to heal; his 55th surgery is planned

April 3, 2014

InForum | Original Link Not Available by Helmut Schmidt St. Paul, Minnesota, United States –Garrett Grommesh has nearly died twice in the past three months. The Moorhead 13-year-old underwent the 54th surgery of his young life Thursday in Children’s Hospital here. Friday, he will undergo his 55th surgery. The past three months have been a

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'Last' Russian Orphan Blossoms in US Home

February 10, 2014

ABC News | Original Link by Kirit Radia Moscow, Russia -What a difference a year makes. And love and care, too. Last January, Polina Skaggs was a 5-year-old Russian orphan with spina bifida caught in a geopolitical minefield. After Russia cut off adoptions to the United States in December 2012, her adoption by an

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UK school is going yellow for charity

October 25, 2013

RYE’S new Studio School is holding a special Yellow Day event today (Friday) to raise funds and awareness for spina bifida. Rye & Battle Observer | Original Link Rye, England, UK —The event is being organised by 14 year old Lauren Gander, a pupil at the school who suffers from the condition

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Katie Hull, Long Beach 10-year-old with spina bifida, surfs, skis and writes

October 18, 2013

Long Beach Press Telegram | Original Link by Josh Dulaney Long Beach, California, USA —Katie Hull is hard to miss. But it’s not just the bright blue eyes and wide smile that draws one’s attention to the 10-year-old girl. It’s the unquenchable fire of a fifth-grader whose life is a daily testament to

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Katie Can Do [video]

September 30, 2013

Vimeo | Original Link Katie Hull leads the way on redefining Spina Bifida You can learn more about Katie and order her book at katiecandoandyoucantoo.com Katie Can Do from Kyle Spencer Ahlstrom on Vimeo.

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Book Release: Ability Therapy

September 29, 2013

Disabeauty | Author Website Wauwatosa, Wisconsin, USA —Disability advocate, nationally recognized thanatologist and Christopher & Dana Reeve Foundation mentor, Sarah Cecelia Ann Mueller debuts her first book, Ability Therapy—the most recent addition to Abbey Press’ popular Elf-Help series. Sarah Mueller was born with the birth defect spina bifida myelomeningocele, the driving force

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Spina Bifida | Amazing Embarrassing Body

September 29, 2013

Illness Solutions TV | YouTube Link Meet Kay, UK Freelance Fashion Stylist Great Britian, UK

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