Pre-teen Darren plays the drums and loves music

October 7, 2015

My son, Darren, was born with spina bifida March 19,2003. He has brought so much joy to our family. He has taught me the meaning of STRONG!Currently a sixth grader, Darren loves music. He plays the drums.—Tonya Shockey, parent

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Landon | What life is like (for him)

October 5, 2015

by Latina AdgerThis is Landon, he is 21 months old and was born with Spina Bifida (myelomeningocele L2/L3), Hydrocephalus, epilepsy, bilateral clubbed feet, dysgenesis of the corpus callosum, and Arnold-Chiari malformation II. He has a VP shunt, and is a partial paraplegic; with absolutely no sensation from the knees down. Landon

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Mariah, high school sophomore, brings her energy to the varsity cheer team

May 31, 2015

by Lisa MercerCeres, California, United StatesMy daughter, Mariah, was born with spina bifida myelomeningocele. She uses a wheelchair and has a VP Shunt. Mariah was born with a lesion at L5; her bladder and bowels don’t function. Mariah truly inspires me everyday. She is now 15 years old and is finishing her

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Riley, an outgoing, social teen inspires a playwright

March 19, 2015

by Rachel AllenJohnstown, Pennsylvania, United StatesMy daughter Riley, 14, was the 16th baby to undergo in-utero surgery at CHOP (Children's Hospital of Philadelphia) in 2000. She was born at 29 weeks and has always shown a tenacity and determination. Riley is beautiful, bright and in the National Honor Society at her middle

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Carter, an active toddler ready to walk

July 18, 2014

by Rebecca, a mom in Wisconsin Wisconsin, United States —Our Son, Carter, was born February 26, 2013 with myelomeningocele spina bifida, hydrocephalus, and Arnold Chiari Malformation II. He is our Rock Star! We live in Wisconsin and all his care is provided by the American Family Children’s Hospital of Madison, WI. From

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Differently Abled: Paul Kosson's Story

May 13, 2014

YouTube | Original Link by Daniel Wetter, Paul Kosson's cousin Paul Kosson and his mother discuss their journey together with Spina Bifida and how it affected their relationship. They finish off with a hopeful outlook into the present and future.

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Ashley, bright, happy little girl

March 4, 2014

Ashley has spina bifida and hydrocephalus. She is 7 years old. Throughout her life, we've had constant battles with the education / medical system fighting for one thing or another which has caused her to struggle with selective mutism but regardless to all the troubles she is a bright, happy

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Sam, college student studying education

November 14, 2013

I have a 21 year old son who was born with Spina Bifida and also has scoliosis. He has been my inspiration for what he has achieved in his life so far. He only has one year left to become a Primary school teacher, the Royal Children's Hospital did a case

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Allyson, sign language interpreter

October 7, 2013

Just found your magazine and am thrilled with the stories and content. My daughter, Allyson, was born 32 years ago with spina bifida, her lesion is between lumbar 4 & 5 and she does have a shunt. The doctors said she would never walk but she did begin to walk at

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Grace Anne, varsity cheerleader

September 23, 2013

Hello, I read the story of teen Jasmyn Sloan. That is certainly inspirational. The reason I’m writing is my daughter, Grace Anne. She is 15 and also suffers from Spina Bifida. She is in a wheelchair but she doesn’t let it stop her in any way. Her favorite phrase is “I’ve

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